Little girl hailed as 'kindest little person in the whole world' given CPR after stopping breathing
‘She's loved more than words can say’
A battling youngster who is ‘the kindest little person in whole world’ had to be resuscitated three times after stopping breathing.
Seren-Grace Brady, whose mum Sha’ani Bellingham, 35, is originally from Thorney Close in Sunderland, suffers from seizures - but three of the episodes were so serious that she needed full CPR. They were described as ‘horrible and very scary for the whole family.’
Seren now faces a stay in hospital in the next few days while doctors try to find out more. She has a condition called Tatton Brown Rahman Syndrome which is a rare genetic disease.
It can cause developmental delay and overgrowth. She may be only seven but she is nearly 5ft tall. Her syndrome means she is already wearing clothes meant for an 11 or 12 year old.
She is seen regularly by 21 health specialists and needs 24-hour care as she lives with a condition which is so rare that only 250 children in the world have it.
Now the 6-year-old is about to be admitted into the Royal Victoria Infirmary in Newcastle. Doctors are planning a study of her sleep patterns because she pauses breathing in the night.
Sha’ani said: “Seren is a wonderful loving 7 year old girl with a condition genetic condition called TBRS. Seren is pre verbal, is unable to walk and is unaware of any dangers around her so requires 24 hour care.”
Seren, who lives on the outskirts of Hartlepool, will need care all her life and Sha’ani added: “She also suffers from seizures which is absolutely terrifying as on three occasions she has needed full CPR. She can stop breathing during a seizure which is horrible and very scary for the whole family.
“Although Seren has got a lot of health needs she is the most loving caring wonderful little girl in the world and she loves her family more than anything. She loves to give her sisters kisses and cuddles and always has a smile on her face.
“After all her struggles and challenges she's always happy and the kindest little person in whole world. She's loved more than words can say.”
Parents Sha’ani and dad Sean Brady, from Newcastle and who works as a retail manager, have faced health problems with Seren since she was born.
They have started their own JustGiving page which you can find here.
Sunderland woman Maureen Thompson is hoping to raise much-needed funds so that the youngster can get specialist physio as well as speech and language support.
The Allan Thompson Fundraising Event will be held at The Alexandra Steakhouse in Sunderland on Saturday, November 14. Before then, Maureen is also holding raffles and appealing for cash donations. Find out more at https://www.facebook.com/events/the-alexandra-steakhouse/allan-thompson-fundraising-event/999650182913143/