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"Life is hard for her" - Mums plea for sensory room to support seven-year-old girl Lilly-Mae

The mum of a seven-year-old girl, who suffers from epilepsy, autism, hyper-mobility and learning difficulties has spoken of the struggles and the need for a safe sensory room for her to play in.

By Georgina Cutler
Wednesday, 7th April 2021, 7:00 am

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Lilly-Mae Edninson suffers from epilepsy autism, Micro Philly head hyper-mobility and learning difficulties.
Lilly-Mae Edninson suffers from epilepsy autism, Micro Philly head hyper-mobility and learning difficulties.

Lilly-Mae Edninson, 7, from Sunderland was diagnosed with epilepsy following a 45 minute seizure just a week after her 1st birthday before being diagnosed with autism, learning difficulties and Micro Philly head hyper-mobility, a flexible joint syndrome.

Lilly, who is non-verbal and still wears nappies finds it difficult to express herself which means life can be overwhelming and frustrating for the seven-year-old according to Mum Chelsea

Chelsea said: “Lilly gets very frustrated because she can’t tell you what she wants, it often causes temper tantrums and sometimes lashes out and throws things.

Lilly-Mae Edninson with Mum Chelsea.

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"She’s hard to control at times because she’s very strong and it can be stressful if she’s having a bad day.”

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The family, who are from Gindon are now raising funds to build a sensory room for Lilly Mae to play in and express herself in a safe way.

Mum Chelsea, who is Lilly’s full time carer, says the room will give her a safe place to play and “be herself in her own world.”

Lilly-Mae Edninson.

She added: “She’s happy a lot of the time and smiling so this sensory room will really help her control her emotions and her anger because life can be hard for her when she can’t express what she’s feeling.

"A sensory room would really help Lilly be in her own world rather than trying to bring Lilly in this world.”

Lilly, who still suffers from seizures and was also born with a hole in her heart struggles to walk long distances but still makes the most of days out attends Sunningdale School in Sunderland.

Dad, Adam Edninson also helps take care of Lilly on weekends.

Lilly-Mae Edninson with dad Adam.

Chelsea added: “Lilly was my first child and it is harder to look after her but we all love her so much and it’s awful to her so frustrated.

"She’s so bubbly and this sensory room will make such a huge difference to her life.”

You can donate to Lilly’s fundraiser here.

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