Letters, Tuesday, April 15, 2014

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Have your say

Have your say on end of life care

I AM writing to raise awareness of a survey which has been launched to improve future end of life care.

 We are particularly keen to know the views of people likely to be in the last years of life, current and bereaved carers and their families, and the questions they believe need answering through research in order to improve care for people with life-limiting and terminal illnesses.

 The project was initiated by Marie Curie Cancer Care and is supported by many other leading organisations such as The National Institute for Health Research, The Motor Neurone Disease Association, Age UK, The National Council for Palliative Care, Stroke Association, British Lung Foundation and the Multiple Sclerosis Society.

 By filling in the survey, you can help to influence which research projects receive funding.

 Currently, the questions that are researched are largely decided by researchers, and organisations that fund research, but this project will allow patients, carers, families and the professionals who support them to have their say on what is most important.

 You can contribute your thoughts, and any unanswered questions that you have that you would like research to find the answers to, by filling in a short survey at www.palliativecarepsp.org.uk or speaking to the project co-ordinator on 020 7091 4153 who will post the survey to you.

 The survey will only take 10 minutes, and your voice can ensure that research improves the care and support that can be provided for those in the last years of life, their carers and families.

 Thank you for your support.

Helen Forrow,

Hospice manager, Marie Curie Hospice Newcastle

Double standards

THE Independent Parliamentary Commissioner for Standards had found that Maria Miller had over-claimed £45,000 in mortgage payments and council tax on what was designated as her second home.

 In fact, it was a house which she shared with her parents, and as such she had “broken Common’s rules”.

 However, the Tory MPs decided that she should just repay £5,800, apologise and “get on with the job”.

 David Cameron insisted that she should not have to resign and accused Labour of “weak leadership” for asserting that she should. When she had no option but to resign, Cameron said that he “looked forward to seeing her back in Parliament soon”.

 What we must remember here is that these extremely rich MPs have imposed a spare room tax on the poor, regardless of the size of the room, or the family/community contacts and support. And diminishing their benefits if they don’t or can’t move, therefore further impoverishing these people.

 If a person on welfare benefits had over-claimed £45,000 they would be on their way to prison.

Euan Tipe