How you can help transform this Sunderland family's garden so two-year-old George can play outside

Playing outside in the sun is something every child enjoys - but for a little boy from Sunderland it is sadly off limits.

Tuesday, 23rd October 2018, 9:47 am
Updated Tuesday, 23rd October 2018, 9:53 am
Nicola and George playing indoors.
Nicola and George playing indoors.

When Nicola Hoggarth was 18-weeks pregnant, her and husband Steven were told their son George had Axenfeld-Rieger Syndrome - a rare disorder which predominately affects the eyes.

It means George, who has recently turned two, is extremely sensitive to sunlight and isn’t able to play outside in his own garden.

George Hoggarth has Axenfeld-Rieger Syndrome.

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George needed two operations to have a cornea transplant in both eyes when he was just weeks old.

And scarring and infections have led to the battling youngster losing his sight in his right eye while sight in his left eye is severely impaired.

George, who lives in Silksworth, had his first operation when he was just two weeks old.

Mum Nicola said: “George has Axenfeld-Rieger Syndrome which is a genetic condition that he got from myself.

Nicola and George in the garden on a morning before the sun rises.

“I didn’t know I had it until I was pregnant.

“He was required to have two cornea transplants which he had done when he was 12 and 16 weeks old.”

Surgeons will be repeating both of the transplants in Manchester in the future.

“It will give him slightly more in his left eye,” said the mum-of-one.

Little George needed his first operation when he was two weeks old.

“He’s really sensitive to sunlight and it makes it really difficult for him to go outside.

“Our garden is so exposed to sunlight. He wouldn’t think twice to just close his eyes and run and he could fall and really hurt himself.”

George needs eye drops every hour throughout the day as his eyes don’t self lubricate.

After operations and during infections, little George has needed drops every half an hour even during the night.

George after one of his two operations.

This year, the funds raised at the annual charity event in memory of Allan Thompson - who died in July 2000 aged just 43 after a lengthy battle with leukaemia - will go towards helping to making the garden safe for little George.

Special sails will help shade his garden and allow him to play outside with family and friends.

Nicola, a nursery nurse, said: “In the garden we have a wall that isn’t very tall that splits the grass and the concrete.

“It’s too low down that George can’t really see it and there’s a drop from the grass to the concrete on the other side.

“We’re looking at levelling out the garden or putting a ramp or wide stairs.”

Maureen Thompson, who has been organising the fundraiser for more than 20 years, found out about George through Nicola’s aunt.

Peter Lovegrove and Jamie Gleghorn with residents of Sycamore Care Centre to promote a charity night. Picture: Tom Banks

Maureen, 61, said: “I lost my husband Allan to leukaemia 18 years ago.

“At first we raised funds for the hospital and then he decided he wanted to do it for children - he never got to see that. I’ve carried on doing it in his memory.

“We always try to raise as much as we can. The nights are fabulous and there are tickets still available.”

Nicola added: “I just thought it was lovely that she can help someone in the community and she chose to help us.

“It would just be amazing. With our garden being the way it is, it’s not safe for him.

“He doesn’t get to go in the garden so we take him out to the park but we have to constantly watch out for things that could be dangerous for him.

“He can’t see the dangers.”

The youngster is developing well and now has transition lenses which do help in sunlight but George still struggles in bright sunlight.

Nicola added: “He’s a very determined and resilient. He’s funny and sociable and he likes to engage people in everything he’s doing. He’s just a lovely, good-natured little boy.”

This year, the money raised will be split between providing a new garden for George and to spend on activities for residents at Sycamore House, in Sunderland.

Kristy Barkes, 45, has helped Maureen run the fundraiser for a number of years and asked if money raised could go towards residents at the care home.

She said: “We had to put my mam, Irene Gibson, in the care home. She has dementia and it was just to keep her safe really.

“The ward my mam is on is for people with dementia and I felt some of them didn’t have lots of visitors.

“I wanted to try help do something for all of them - not just my mother.”

Peter Lovegrove, activity coordinator manager at the care home, said: “To have these activities we have to keep on raising money.

“We hold raffles and different fundraisers throughout the year but for someone on the outside to want to raise funds it’s amazing - it’s a massive help.”

•The fundraiser will take place at The Alexandra Steakhouse on Saturday November 10 starting at 7pm to 1.30am. There will be live music and entertainment, raffles, a photo booth by Boothalicious, and more.

To donate a raffle prize or buy tickets for the fundraiser, which cost £6, call Maureen on 07794 303497.

The garden is too dangerous for George