A DAD and daughter battling multiple sclerosis are giving their support to a pioneering register to help sufferers.
The MS Society has launched the world’s first MS register, which aims to revolutionise the way people with the condition access care and services they may need in the future.
The scheme will bring together information from people with MS themselves, alongside data provided by medics and other routinely collected NHS information.
The aim is to map every person with MS in the UK, to develop a true picture of the impact of the condition.
For the first time, it will be known what type of MS people have, the treatment they are receiving, and how the condition affects their daily lives.
Stuart Wood and his daughter Lucy, seven, are today urging fellow MS sufferers to sign up to the scheme to help others across the country.
Stuart, 42, of Peterlee, said: “The UK MS register is a world first that will have information for health professionals to pinpoint who’s got MS in the country and what stages they’re at.
“This will help them to focus where treatment is needed and what can be done in the future but it can only work if people use it.”
As reported in yesterday’s Echo, Stuart and his daughter Lucy both suffer from the disabling neurological condition.
At five, Lucy became one of the youngest people in Britain to be diagnosed with MS after years of illnesses.
Over the last two years, brave Lucy has trialled several drugs to control the condition but has reacted badly leaving her parents to face a tough decision.
Stuart and his wife Sharon were given a choice of three drugs.
After consulting medics across the globe, they chose tysabri, a medicine specifically for adults that can cause brain damage.
Brave Lucy started the treatment in March and to date has been coping with it well but her family said it is early days.
Stuart said: “We really would urge people to sign up to this.”
Visit www.mapms.org.uk for more information.