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Sunderland girl’s family hold fundraiser to help fight cystic fibrosis

Chris and Nadine Page with their four-year-old son Dominic and baby Elliot.

Chris and Nadine Page with their four-year-old son Dominic and baby Elliot.

A FAMILY raising cash for the charity helping their sick baby are holding a glamorous ball.

Since six-month-old Elliot Page was diagnosed with cystic fibrosis (CF), his family has thrown themselves into raising cash for research and awareness of the condition.

So far they have raised more than £3,000 for the Cystic Fibrosis Trust but hope to add to that with a Sunderland ball.

More than 300 people will attend the summer ball at Ashbrooke Sports Club on Saturday, September 6.

It has proved so popular organisers have had to book a bigger marquee.

The ball has been organised by North East Accident Repair Centres, where her husband, Chris, works as a spray-painter.

Elliot’s mum Nadine was delighted when the company said all the funds would be going to the charity.

Nadine said: “We were over the moon when they said they would do this. We have had so much support from people, it has been great.

“Since we started fundraising, I have had lots of people contacting me, saying their child has CF and they are really pleased we are highlighting the condition and would like to help us with future events.”

Nadine and Chris, of Beckwith Grange, Doxford, were devastated when health officials broke the news that the standard heel prick test for newborns had shown their apparently healthy youngest son was suffering from the serious, life-limiting condition.

Nadine, who is also mum to four-year-old Dominic, said: “It was a massive blow and I was really on rock bottom. I still get days which are very hard.

“A first I thought I wouldn’t tell people, because it is not something you can see and I wondered if I should just keep it quiet.

“But, then I realised if I kept quiet then I couldn’t help with the fight against it of be able to raise awareness of it.”

Although Elliot needs daily medication and physiotherapy to help his condition, in the short term he should develop like any other child.

However, cystic fibrosis, which is an inherited disease affecting almost 10,000 people in the UK, causes the lungs and digestive system to become clogged with a thick, sticky mucus, causing serious problems as time goes by and often leading to the need for a lung transplant.

Thanks to advancement in modern medicine, many people with cystic fibrosis will live past the age of 50.

Nadine says the aim of fundraising is so research into the condition can continue and hopefully find ways of giving Elliot, and other children like him, a longer and better quality of life in the future.

Nadine’s mum, Carol Wood, has set up a justgiving page and anyone who would like to donate should visit https://www.justgiving.com/cf-toddle/.

 

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