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Parents hunting medication to ease baby’s severe epilepsy

Bob Waite with Rick Osborn and his 10-month-old son Oliver Osborn who suffers from severe epilepsy.

Bob Waite with Rick Osborn and his 10-month-old son Oliver Osborn who suffers from severe epilepsy.

FRANTIC parents are desperately seeking medication they hope will slow down the rate of their baby’s severe epilepsy.

Little Oliver Osborn suffers up to 100 seizures a day, and has little quality of life.

He is 11 months old, but parents Danielle Coils, 28, and Rick Osborn, 29, say he is “just like a newborn” because he is always so heavily sedated to control his condition.

He needs an emergency drug four times a day and medics are carrying out tests to determine the exact type of aggressive epilepsy Oliver has.

Danielle, who works at Hays Travel in Sunderland, said: “If it’s the condition we think it is, he will only deteriorate to a point where it will take his life.

“What we are trying to do is find the medication that will slow it down.”

Oliver’s seizures were originally put down to normal infantile spasms, but after leaving hospital, they got progressively worse reaching 30 a day.

He spent five weeks in Sunderland Royal hospital and six months in Newcastle’s Royal Victoria Infirmary.

Danielle, who lives with Rick, who is Oliver’s carer, and their son Charlie, three, in Wadham Close, Peterlee, added: “It’s aggressive by the fact none of the drugs are helping.

“The doctors believe they know what type it is, but they can’t tell us until we’ve had the results of genetic tests.”

Medics think Oliver has migrating partial epilepsy, which is very rare and can affect development.

The family, who are being supported by the Epilepsy Action charity, have visited a consultant at London’s Great Ormond Street Hospital, who also believes Oliver has this form of epilepsy.

Meanwhile, the community is rallying round to help buy equipment for Oliver.

Retired chimney sweep Bob Waite, 63, is setting out on a mammoth journey, from Land’s End to Berwick, using just his bus pass to help the youngster.

The dad-of-two, from Blackhall, said: “What’s a week out of my life to help this little boy? It’s nothing.”

•To sponsor Bob call 0191 587 9904.

 

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