Fundraising gig for toddler with rare illness

Gemma Nelson with her two-year-old son Jack Baird.

Gemma Nelson with her two-year-old son Jack Baird.

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A TRIO of bands will take to the stage to help a toddler in his fight for survival.

Three-year-old Jack Baird is one of only 150 children in the UK suffering from Sanfilippo disease, which causes a range of mental and physical problems.

Because of his condition, the Ryhope tot is not expected to live past his teenage years.

His family and friends are ploughing their efforts into raising enough money to fund a drug’s trial which could prolong his life.

Along with 19 other families of children suffering from the killer condition, they have raised £400,000 towards the £600,000 needed.

The latest in a long line of fund-raising events will see bands The Stottin Headaches, Rock Sound and The Green Room perform at The Alexandra pub in Grangetown on Saturday night. Tickets to Rock for Jack are £2 on the door.

At the helm of Rock for Jack is Michael Defty, who was inspired to help the little boy after hearing about his plight.

Jack’s mum, Gemma Nelson, said: “Because of his condition, Jack is not expected to live past his teenage years, but I’ve spoken to a mum in America whose son takes the drug, and he is now 15.”